The community is coming together on Sunday, March 8 to help local boy Jarrah Jones raise funds to purchase a purpose-built vehicle that will help him enjoy the activities he loves.
In 2018 at the age of 13, Jarrah was diagnosed with Wilson’s disease. It’s a rare inherited disease that affects approximately one in 30,000 people.
Before his diagnosis, Jarrah’s hobbies included running, acting and creating YouTube videos. But in the past two years, as a result of the disease, his speech and mobility have been severely impacted. He has undergone a number of surgeries, and is now confined to a wheelchair.
The Mary Valley Rattler team hopes to raise $4000 as part of the upcoming charity day. This will be used to help purchase the vehicle.
Mary Valley Rattler general manager Mike Green says, “We can appreciate that it must be a difficult journey for Jarrah and his family. After speaking with the family, we understand that their current fundraising project to purchase a purpose-built vehicle would be of great value in transporting Jarrah to medical appointments and provide an opportunity for him to get out and about, in general.”
The Red Rocket railmotor has been recently reconfigured to accommodate priority wheelchair accessibility, and offer disability passengers a comfortable space to enjoy their journey onboard.
“Having the capacity to take wheelchairs on board the Rattler ensures the whole community can enjoy the full heritage experience at the Gympie and Amamoor stations and on board the popular Rattler Tasting Train and Rattler Picnic Train experiences, as well as the steam services over the six days that the Rattler currently operate,” says Mr Green.
The Red Rocket will be on track and ready to venture off for the day, to showcase the beauty of the Mary Valley to patrons. Morning tea will be offered onboard. Friends of Amamoor community group will be cooking up a sausage sizzle and the last stop will be a wine and cheese tasting provided by the Dagun Community Group, with a goodie bag to take home.
It will be a great day out for the whole family – they can all experience a scenic train ride while contributing to a great fundraising cause.